Jeremy Fogelson, and asked for an appointment. It told me everything that the other surgeons missed, and so I wrote to that Mayo surgeon, Dr. Here is a link to medical literature that I found because I looked up a term in literature co-authored by a Mayo neurosurgeon. Are you monitoring that with a pulse oxymeter? Do you have asthma or allergies that could be causing some of that? Would you consider getting a different neurosurgery opinion? It concerns me to hear a surgeon say all the issues in your neck cannot be causing your weird sensations, because that is what I experienced for 2 years before I found a surgeon at Mayo who understood this. I also had muscle twitches in my legs and arms. It was a reason that I was refused surgical help elsewhere. I can tell you my experience with spinal cord compression in my neck caused crazy pains all over my body, and that confused a lot of spine surgeons before I got to Mayo. If you do share information from an imaging report here, please remove any identifying information about yourself first. Ĭould you explain more specifically what the issues are with your spine? Do you have compression of the nerves that exit between the vertebrae? Do you have spinal cord compression? Where are the bone spurs are they pressing into anything?Ī spine problem alone can cause pain, and I would think that adding shingles to that and inflaming nerves would only make that worse. In this link, you can see a dermatome map. The dermatome map shows where every nerve that exits the spinal cord travels when it gets to the surface of the body. It’s really taking a toll on me and the family trying to find out, any feed back would be Hello Drigg, from what I understand about Shingles is that it will cause blisters on the skin surface that follow the pathways of the spinal nerves from the dermatomes. Has anyone had these kind of symptoms together?Ĭan’t find any conditions that have all of this crazy stuff together. Muscle twitching in arms, legs, back, neck buttocks, chin They concern me the most.įace pins and needles ,Burning & Tightness The sensations feel to be about the same and the twitching may be a little better but is still somewhat constant. I just finished my first real treatment today for my conditions which was 3 doses of methylprednisone 1000mg pulse treatment infusions. Now I have muscle twitching throughout my whole body. I have a small fiber biopsy scheduled in May. My diagnosis is Transverse Myelitis with possible CNS inflammation but doesn’t seem to fit. EMG’s of my leg and arm have come back normal. The opening pressure during the Lumbar puncture was 25.5 which is a little high, but was attributed to a traumatic tap. They did do a spinal tap which showed raised CSF proteins at 95 MG/UL, with no white blood cells and no banding that would indicate multiple sclerosis. Several neurologists have did extensive work ups and have not found anything on my brain or spinal cord imaging that would explain the sensations. After going to the neurosurgeon he said that the degeneration in my neck was not causing the weird sensations and referred me to a neurologist. He noted that my history of psoriatic arthritis may have contributed to the problems in my neck. My family practitioner suspected this degeneration could be causing my sensations and sent me to the neurosurgeon. These sensations were unbearable, so my family physician prescribed me gabapentin which helped my a lot! Since then I have had to up my dosage x2 from 900mg to 1800mg.įollow up MRIs showed that my neck was riddled with arthritis, stenosis, bone spurs and other degeneration. ![]() The itching and tingling sensation soon spread from my legs to my arms, torso and genitalia. I also had burning on my back, shoulder and arm. ![]() Then a couple weeks later (January 15, 2022) my legs started prickling, itching (not a physical itch) or tingling ( a very unpleasant sensation that is hard to describe) especially when I wore pants or any type of material was touching them. After three weeks of extreme worrying about the MRI report they found out is was not cancer and just a artifact on the imaging. The small blistery patch was diagnosed as shingles and was treated with antivirus meds. I had a bump and blister on my neck next to my spine, had an MRI done, and the report said it was probably cancer. My journey started about four months ago (December 07, 2021).
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